We are working to have another DIPG Awareness Day in Maryland and Pennsylvania on May 17, 2017. But this year we do not want to limit our efforts to these two states. We are working with families and other foundations to spread this project to every state in the country. We are launching this effort now, during childhood cancer awareness month, with the goal of seeing the results of our collaboration during brain tumor awareness month in May.
There are a few central pillars to this initiative:
(1) By banding together to advocate for the same day in multiple states we will be able to gain more momentum and draw even more attention to DIPG on a unified awareness day.
(2) While every family and advocate should use their own personal story to urge their state government to adopt DIPG Awareness Day, the proclamations we seek should not be child-specific to ensure they include and represent ALL children who have faced or are facing this disease.
WE WANT YOU TO JOIN WITH US. On the right side of this page, you will find a list of states where work is already underway and/or there are already volunteers ready to work to establish May 17 as DIPG Awareness Day. You may sign up to work with the group established in your state, or you can sign up to help lead the way where you live. Whether your state is listed or not, please sign up using the form below to join this initiative.
You will not be working alone. We will use September to organize our groups and then follow with guidance, instructions, and templates for next steps. This is a group effort. TOGETHER, we will raise awareness, drive more people to action in supporting the cause and funding essential DIPG research . . . and DEFEAT DIPG!!