Inaugural Superhero Sprint & 6K Honors Our Childhood Cancer Heroes and Raises Over $127,000

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The inaugural Defeat DIPG Superhero Sprint & 6K, held on May 29, 2016, was a wonderful success, raising over $127,000!  Over 800 people registered for the 6K, 1K or Tot Sprint, and another 50 virtual runners sent their support from afar.  We had an incredible crew of volunteers, event staff, and spectators who also joined in the fun.  We give special thanks to our Presenting Sponsor, Headfirst Summer Camps, for their dedication to the cause and efforts to make the event fun and special for all.

The morning was filled with friendship, hope, and inspiration in the fight for a cure to DIPG.  We honored many of our childhood cancer heroes through our Salute Our Superheroes Wall.  We were so fortunate to bring together so many families who have been in this fight and continue to raise their voices and take action to fight childhood cancer.

We congratulate our top finishers and every person who participated.  The awards overall and each age category for the 6K can be found HERE.  The complete results for the 6K are HERE.

This event would not have been possible without our awesome volunteers and our incredibly supportive event sponsors.  Our Community Partner, Westfield Montgomery, provided invaluable assistance.  We thank Tommy McFly from the Tommy McFly Show on 94.7 Fresh FM for serving as our emcee for the event!

Please take time to check out this complete list and support these businesses who have partnered with us in the fight against DIPG brain tumors.  We can’t wait for 2017!  Stay tuned for details!

WITH DEEP APPRECIATION TO OUR SPONSORS AND SUPPORTERS

PRESENTING SPONSOR
Headfirst Summer Camps

PLATINUM SPONSORS
The Annette M. and Theodore N. Lerner Family Foundation
By Bryan Edward
NextGen LED
PepsiCo

GOLD SPONSORS
Debevoise & Plimpton LLP
Kaiser Permanente
Lilian Cohen Design

COMMUNITY PARTNER
Westfield Montgomery

MEDIA PARTNER
94.7 Fresh FM

PACKET PICKUP SPONSOR
Sports Zone Elite

EVENT DJ
DJ Jamaal

EVENT PHOTOGRAPHER
Joanna Little Photography

SILVER SPONSORS
Children’s National Health System
Fishel Hass Kim Albrecht LLP
Good Stuff Eatery
The Harbor School
Jessica Neumann Photography
Kadin Family Chriopractic & Wellness Center
Kidball
Kidville-Fallsgrove
Main Stage Home Staging & Organizing
Prosperity Home Mortgage LLC – Lynlea Cronin
Team 91 Lacrosse

BRONZE SPONSORS
Brit-Am Soccer Academy
Congressional Insurance Associates
Creig Northrop Team of Long & Foster Real Estate
Jim Coleman Toyota
Temple Sinai
Whole Foods

 

After Losing Their Son to Childhood Cancer, DC Lawyers Fight to Improve the Chances for Others, by Roksana Slavinsky, Bisnow DC

Roksana Slavinksy of Bisnow DC tells the story of the Mosier family and their quest to find a cure.  Slavinsky highlights the Dress Down to Defeat DIPG event in June, where law firms in DC, New York and Baltimore will designate “go casual” days where employees will donate to the Michael Mosier Defeat DIPG Foundation in order to dress casual for work.  Check out her article HERE.

Maryland Lt. Governor Rutherford Welcomes Michael Mosier Defeat DIPG Foundation to State House in Annapolis for First-Ever DIPG Awareness Day

 

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For the first time in Maryland’s history, Governor Larry Hogan established May 17, 2016, as Diffuse Intrinsic Pontine Glioma (DIPG) Awareness Day, to help raise public awareness of this deadly childhood cancer.  Michael Mosier Defeat DIPG Foundation was pleased to visit the Maryland State House in Annapolis on May 17, to receive the official Proclamation.  Lieutenant Governor Boyd Rutherford presented the Proclamation and spoke to the gathering of DIPG families, leading doctors and researchers from NIH and Children’s National Medical Center, and other supporters.

Executive Director Jenny Mosier delivered a speech to mark the occasion and recognize a number of Maryland children who passed away due to DIPG, including her son, Michael Mosier, Christopher Sliker, Crystal Krug, Brogan Ruppert, Sebastian Gagliardi, Emma Hensel, Sarah Rosenbaum, and Sydney Schlobohm.

DIPG is the leading cause of childhood death due to brain tumors and typically strikes school-age children. DIPG Awareness Day falls during brain tumor awareness month, and specifically on the one-year anniversary of the passing of Michael Mosier, for whom Michael Mosier Defeat DIPG Foundation is named.

“We thank Governor Hogan and Lt. Governor Rutherford for their strong leadership. Through this Proclamation, they are giving a voice to children who are unable to advocate for themselves. Recognizing this devastating disease is an important milestone in the quest to promote awareness of one of the leading causes of disease death for our children,” says Jenny Mosier, Executive Director of Michael Mosier Defeat DIPG Foundation, “This awareness day honors our son, Michael, along with all of the young children who lost their lives too soon after brave battles with DIPG.”
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Michael Mosier Defeat DIPG Foundation Expanding Across the Map to Find a Cure for DIPG Childhood Brain Tumors

Michael Mosier Defeat DIPG Foundation, a nonprofit whose mission is finding a cure for DIPG (diffuse intrinsic pontine glioma), announced today that it is expanding from its headquarters in Maryland across the United States. The Foundation will now operate in Texas as Connor Man Defeat DIPG Foundation and in Washington as Avery Huffman Defeat DIPG Foundation.

 

In June 2015, Jenny and Mark Mosier created Michael Mosier Defeat DIPG Foundation to fund research for DIPG, the deadliest form of pediatric cancer, and to promote awareness of the disease. Before Michael Mosier passed away in May 2015 at the age of 6, he began raising money to fund DIPG research to help other kids who received the same diagnosis that he did. Over the past 12 months, between Michael’s fundraising and the Foundation’s work, the Mosiers have raised nearly $500,000 for research. By expanding across the United States, Michael Mosier Defeat DIPG Foundation expects to continue its rapid growth and increase its capacity to fund essential childhood cancer research.

 

Through their work for the Foundation, Jenny and Mark connected with Amanda and Brandon Huffman in Auburn, Washington, and Alexis and Peter Olympia in Houston, Texas. These families were unfortunately following the same path as the Mosiers, as each family had a child battling DIPG. Sadly, Connor Olympia passed away from DIPG in October 2015, and Avery Huffman passed away from DIPG in February 2016.

 

In the face of the devastating loss of all of their children, the Mosiers, Huffmans, and Olympias committed themselves to their common passion to find a cure for DIPG. With Michael Mosier Defeat DIPG Foundation established as an active presence in the DIPG community, the families decided that they could best further their common goal by working together. Michael Mosier Defeat DIPG Foundation will now operate in Washington under the trade name Avery Huffman Defeat DIPG Foundation and will do business in Texas as Connor Man Defeat DIPG Foundation. The families expect to grow stronger through their geographic diversity, and they will work to expand the already powerful base of support in each of their communities.

 

“The shared nightmare of watching your child deteriorate day-by-day as they suffer from this disease creates a strong bond between DIPG families,” says Jenny Mosier, Executive Director of Michael Mosier Defeat DIPG Foundation. “We feel a deep urgency to make a difference and defeat this disease that stole so much from our child and family. It is unacceptable that children diagnosed with DIPG have no treatment options. We are privileged to be working with the Huffmans and Olympias who inspire us and are equally driven to find a cure. They will be a source of strength as we expand our efforts.”

 

DIPG is the leading cause of disease death for children under 10 years old, with a median survival from diagnosis of 9 months and a near 0% survival overall. DIPG typically strikes children between ages four and eleven. Because of its location in the brainstem where all motor activity is controlled, DIPG is inoperable. The disease progresses by taking over a child’s motor functions one-by-one, typically starting with vision and balance problems, before moving to partial paralysis, followed by the inability to chew, speak, swallow, move and eventually breathe – all of this while the child remains mentally intact.

 

For decades, treatment for DIPG has remained the same and has been ineffective. The entire amount spent annually on DIPG research – approximately $3 – 5 million – is less than 0.0005% of the total funding for cancer research. In just the past few years, due to better medical technology and increased access to tumor tissue, researchers have made real advances in their understanding of this disease. There is finally hope for progress in finding a cure.

 

Michael Mosier Defeat DIPG Foundation, Avery Huffman Defeat DIPG Foundation, and Connor Man Defeat DIPG Foundation are dedicated to promoting awareness and finding treatments and a cure for DIPG through funding of medical research.

For a printable copy of this release, with contact information, please click HERE.

What Motherhood Means to Me, One Year After Losing My Son, The Huffington Post, by Jenny Mosier

Executive Director Jenny Mosier shares her reflections on motherhood, one year after her son, Michael, passed away from a DIPG brain tumor.  Read her Huffington Post story HERE.