My name is Khia. My son is 9 year old Ethan Fox. Ethan was diagnosed with DIPG on March 18, 2016. Ethan was a normal 8 year old until around December 2015 we noticed he wasnt feeling well. Christmas break, normally something very exciting for him, was something at this point he was not really into this year. By January, anytime Ethan ate he would throw up. He layed around all day with no energy. Come February, his balance was way off, and he needed help walking. By March, his vision was double, and he had been having headaches that changed to just pressure when he coughed, laughed or sneezed. That was a red flag.
By this time we had been in and out of emergency rooms at 3 different hospitals numerous times. Each time doctors would treat his symptoms and send us back home. It was killing me knowing all these doctors at 3 different hospitals couldnt see that my little boy was dwindling away. Anyone that looked at him could see how sick he was. After loosing 10 lbs, and being miserable for about 3 months, I made yet another checkup visit and demanded a head scan before we would leave that office. So glad I did!!! They flew us to CHOP (one of the hospitals who once sent us away) and were now telling me Ethan has DIPG and pretty much no child survives.
Since then Ethan was put on steroids which controls his headaches. As for his vision it is still doubled. He went from 62 lbs to 109 lbs in a matter of about 3 months. This caused walking problems again due to the weight gain. He has switched hospitals and he was put on new steroids and since then he is down to 98 lbs, up running around, chasing his baby brother, and feeling very good overall. Right now, he gets scans about every other month.
Ethan has a 2 year old brother and an 11 year old sister. Ethan’s dad passed away in 2011. Ethan loves blue, sharks, being outdoors and loves video games. We live in Pennsylvania. Ethan loves his siblings and enjoys doing things with them.
Need a miracle not only for my baby but every other child out there battling this horrible DIPG.
Submitted by Ethan’s mom, Khia.
To support the family and Ethan’s medical expenses, please visit Ethan’s You Caring Page.