My name is Allyssa Kerby, a Kindergarten teacher in Dearborn Public Schools in Dearborn, Michigan. Lexys Lamp is an only child who began in my Kindergarten class at DuVall Elementary in Dearborn, Michigan in September. Around the 12th day of school, I noticed her left eye drooping towards her nose. She was unable to keep her head up, and it happened over night. I talked with her mother about visiting the eye doctor immediately. She ended up taking her daughter to the eye doctor in the afternoon of the 18th day of school, and little did we know she would not be allowed to return. The eye doctor noticed a tumor and sent Lexys and her mother to Children’s DMC. The doctors began to operate on Lexys, but realized the tumor was actually on the stem of her brain, so they could not continue. Lexys was officially diagnosed with DIPG which has a 0% survival rate. She could not come back to school because of the high rate of germs, so I began to teach her in the comfort of her own home after school hours were complete. Lexys had a port put in and began chemo and radiation in October. When diagnosed in September they gave Lexys 9-12 months to live. With it being July we are now at month 10 and the doctors have mentioned hospice on more than one occasion, but her family will not give up. Her mother is unable to work due to the high demands of Lexys, and her father works midnights. The school has put on 2 fundraisers for Lexys, and her family has put on one. All together they have raised close to $11,000, but that depleted quickly due to the high doctor bills, hospital stays, organic food she needs for her diet and also the medicine that helps her survive. The new plan of action is a pill that costs over $1,000 (6 pills for $7,000) and needs to be taken 3 times per week for a minimum of 8 weeks. That is over $28, 000, all of which is not covered by her insurance. She has had over 35 radiation treatments and has had chemo almost every Monday since October 2014. She has been very sick these past two weeks while starting her new medication. Lexys has begun drooling from the left side of her mouth because she is unable to control the muscles. She also is unable to pick up her head for more than a couple of seconds and she is unable to look at things straight on. She cannot feel her left hand/fingers/lower arm or leg. Overall, this is an extremely tough time for her family emotionally, mentally and physically.
Lexys will turn 6 on August 27, 2015. She is requesting birthday cards to be sent to her because getting her own mail is her favorite part of the day. I would also like her story out, or at least her go fund me link, so awareness is made and for the family to get the help they need.
Her address is
1536 May St.
Dearborn, MI 48124.
The go fund me link is Gofundme.com/LexysLamp.
Thank you for doing everything in your power to help this little girl!